"In November 2020 my son Isaac who is three years old was diagnosed with epilepsy. He faces a constant battle. On some days he can be hit with over 80 devastating seizures. This is incredibly distressing for him and exhausting for the family. We are at breaking point. We simply want the chance to try medical cannabis which has been life transforming for other children with similar extreme forms of epilepsy. But even though access to medical cannabis was legalised in November 2018, I can’t get access to it either on the NHS or privately.
We’ve tried everything else. He is now on his 13th conventional antiepileptic drug. And we’ve tried other things too like the Ketogenic diet.
As I think any mum would do, I’ve done my research and found the stories of other cases in which medical cannabis has been life transforming for children like Isaac.
But to my frustration and dismay, it seems that the guidance from the NHS and various medical bodies appears to have resulted in a near total block on NHS prescriptions. To the best of my knowledge there have been only 3 such NHS prescriptions since 2018. And the few private clinics that could help appear to have closed their books to new cases like ours. We feel abandoned.
We need the system to change. How can a drug that is prescribed to 3 children on the NHS not be accessible to all that need it and how can private clinics be blocked from accepting new patients?
Please join my call on the Government to intervene and break the dead lock.
In desperation, I am considering going to Holland to get this medicine with all the worry and cost that entails.
I have started this petition to say my child matters, his health and his happiness matter. This medicine can’t just be accessible to some and not to all.
Please sign and share this to get a fair system for treatment." https://www.change.org/p/fair-access-to-medical-cannabis-on-the-nhs-for-all?signed=true